This page is part of the PACIO Advance Directive Information Implementation Guide (v0.1.0: STU 1 Ballot 1) based on FHIR R4. . For a full list of available versions, see the Directory of published versions
Defining URL: | http://hl7.org/fhir/us/pacio-adi/StructureDefinition/PADI-CareExperiencePreference |
Version: | 0.1.0 |
Name: | PADICareExperiencePreference |
Title: | ADI Care Experience Preference |
Status: | Active as of 12/6/21 8:50 PM |
Definition: | Care Experience Preference is a clinical statement that presents the author's personal thoughts about something a person feels is relevant to their care experience and may be pertinent when planning their care. |
Publisher: | HL7 Patient Empowerment Working Group |
Source Resource: | XML / JSON / Turtle |
The official URL for this profile is:
http://hl7.org/fhir/us/pacio-adi/StructureDefinition/PADI-CareExperiencePreference
The ADI Care Experience preference is a mechanism for the patient to represent their thoughts about the care they will receive (before and after an emergency health crisis) and is intended to inform the care team who may not know anything about them what is important to them as care is delivered. Aspects of the patient’s personal preferences and priorities such as what they like or find joy in, what they dislike or fear, what matters to them, the role religion, faith, or spirituality play in their life, and who they might want contacted to support those beliefs are examples of what is represented in this section.
Description of Profiles, Differentials, Snapshots and how the different presentations work.
This structure is derived from PADIGoal
Name | Flags | Card. | Type | Description & Constraints |
---|---|---|---|---|
Goal | 0..* | PADIGoal | Describes the intended objective(s) for a patient, group or organization | |
Slices for category | 2..* | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Slice: Unordered, Open by value:$this Binding: Care Experience Preferences (extensible) | |
category:type | S | 1..1 | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Required Pattern: At least the following |
coding | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex) | |
system | 1..1 | uri | Identity of the terminology system Fixed Value: http://hl7.org/fhir/us/pacio-adi/CodeSystem/PADIGoalCategoryCS | |
code | 1..1 | code | Symbol in syntax defined by the system Fixed Value: care-experience-preference | |
Documentation for this format |
Name | Flags | Card. | Type | Description & Constraints |
---|---|---|---|---|
Goal | I | 0..* | PADIGoal | Describes the intended objective(s) for a patient, group or organization |
id | Σ | 0..1 | string | Logical id of this artifact |
meta | Σ | 0..1 | Meta | Metadata about the resource |
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created |
language | 0..1 | code | Language of the resource content Binding: CommonLanguages (preferred) Max Binding: AllLanguages: A human language. | |
text | S | 1..1 | Narrative | Text summary of the resource, for human interpretation |
contained | 0..* | Resource | Contained, inline Resources | |
extension | 0..* | Extension | Additional content defined by implementations | |
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored |
identifier | 0..* | Identifier | External Ids for this goal | |
lifecycleStatus | ?!SΣ | 1..1 | code | proposed | planned | accepted | active | on-hold | completed | cancelled | entered-in-error | rejected Binding: GoalLifecycleStatus (required) |
achievementStatus | Σ | 0..1 | CodeableConcept | in-progress | improving | worsening | no-change | achieved | sustaining | not-achieved | no-progress | not-attainable Binding: GoalAchievementStatus (preferred): Indicates the progression, or lack thereof, towards the goal against the target. |
Slices for category | SΣ | 2..* | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Slice: Unordered, Open by value:$this Binding: Care Experience Preferences (extensible) |
category:All Slices | Content/Rules for all slices | |||
id | 0..1 | string | Unique id for inter-element referencing | |
Slices for extension | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url | |
coding | Σ | 0..* | Coding | Code defined by a terminology system |
text | SΣ | 0..1 | string | Plain text representation of the concept |
category:type | SΣ | 1..1 | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Binding: GoalCategory (example): Codes for grouping and sorting goals. Required Pattern: At least the following |
id | 0..1 | string | Unique id for inter-element referencing | |
extension | 0..* | Extension | Additional content defined by implementations | |
coding | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex) | |
id | 0..1 | string | Unique id for inter-element referencing | |
extension | 0..* | Extension | Additional content defined by implementations | |
system | 1..1 | uri | Identity of the terminology system Fixed Value: http://hl7.org/fhir/us/pacio-adi/CodeSystem/PADIGoalCategoryCS | |
version | 0..1 | string | Version of the system - if relevant | |
code | 1..1 | code | Symbol in syntax defined by the system Fixed Value: care-experience-preference | |
display | 0..1 | string | Representation defined by the system | |
userSelected | 0..1 | boolean | If this coding was chosen directly by the user | |
text | 0..1 | string | Plain text representation of the concept | |
id | 0..1 | string | Unique id for inter-element referencing | |
Slices for extension | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url | |
coding | Σ | 0..* | Coding | Code defined by a terminology system |
text | SΣ | 0..1 | string | Plain text representation of the concept |
priority | Σ | 0..1 | CodeableConcept | high-priority | medium-priority | low-priority Binding: GoalPriority (preferred): The level of importance associated with a goal. |
description | SΣ | 1..1 | CodeableConcept | Code or text describing goal Binding: SNOMEDCTClinicalFindings (example): Codes providing the details of a particular goal. This will generally be system or implementation guide-specific. In many systems, only the text element will be used. |
id | 0..1 | string | Unique id for inter-element referencing | |
Slices for extension | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url | |
padi-contextualValue-extension | 0..1 | (Complex) | Contextual Value URL: http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-contextualValue-extension | |
coding | Σ | 0..* | Coding | Code defined by a terminology system |
text | Σ | 0..1 | string | Plain text representation of the concept |
subject | SΣ | 1..1 | Reference(US Core Patient Profile) | Who this goal is intended for |
start[x] | Σ | 0..1 | When goal pursuit begins Binding: GoalStartEvent (example): Codes describing events that can trigger the initiation of a goal. | |
startDate | date | |||
startCodeableConcept | CodeableConcept | |||
target | SI | 0..* | BackboneElement | Target outcome for the goal |
id | 0..1 | string | Unique id for inter-element referencing | |
extension | 0..* | Extension | Additional content defined by implementations | |
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized |
measure | SΣI | 0..1 | CodeableConcept | The parameter whose value is being tracked Binding: LOINCCodes (example): Codes to identify the value being tracked, e.g. body weight, blood pressure, or hemoglobin A1c level. |
detail[x] | SΣI | 0..1 | The target value to be achieved Binding: (unbound) (example): Codes to identify the target value of the focus to be achieved to signify the fulfillment of the goal. | |
detailQuantity | Quantity | |||
detailRange | Range | |||
detailCodeableConcept | CodeableConcept | |||
detailString | string | |||
detailBoolean | boolean | |||
detailInteger | integer | |||
detailRatio | Ratio | |||
due[x] | SΣ | 0..1 | Reach goal on or before | |
dueDate | date S | |||
dueDuration | Duration | |||
statusDate | Σ | 0..1 | date | When goal status took effect |
statusReason | 0..1 | string | Reason for current status | |
expressedBy | SΣ | 1..1 | Reference(US Core Patient Profile) | Who's responsible for creating Goal? |
addresses | 0..* | Reference(Condition | Observation | MedicationStatement | NutritionOrder | ServiceRequest | RiskAssessment) | Issues addressed by this goal | |
note | S | 0..* | Annotation | Comments about the goal |
outcomeCode | 0..* | CodeableConcept | What result was achieved regarding the goal? Binding: SNOMEDCTClinicalFindings (example): The result of the goal; e.g. "25% increase in shoulder mobility", "Anxiety reduced to moderate levels". "15 kg weight loss sustained over 6 months". | |
outcomeReference | 0..* | Reference(Observation) | Observation that resulted from goal | |
Documentation for this format |
Name | Flags | Card. | Type | Description & Constraints |
---|---|---|---|---|
Goal | I | 0..* | PADIGoal | Describes the intended objective(s) for a patient, group or organization |
text | 1..1 | Narrative | Text summary of the resource, for human interpretation | |
lifecycleStatus | ?!Σ | 1..1 | code | proposed | planned | accepted | active | on-hold | completed | cancelled | entered-in-error | rejected Binding: GoalLifecycleStatus (required) |
Slices for category | Σ | 2..* | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Slice: Unordered, Open by value:$this Binding: Care Experience Preferences (extensible) |
category:All Slices | Content/Rules for all slices | |||
text | Σ | 0..1 | string | Plain text representation of the concept |
category:type | Σ | 1..1 | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Binding: GoalCategory (example): Codes for grouping and sorting goals. Required Pattern: At least the following |
coding | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex) | |
system | 1..1 | uri | Identity of the terminology system Fixed Value: http://hl7.org/fhir/us/pacio-adi/CodeSystem/PADIGoalCategoryCS | |
code | 1..1 | code | Symbol in syntax defined by the system Fixed Value: care-experience-preference | |
text | Σ | 0..1 | string | Plain text representation of the concept |
description | Σ | 1..1 | CodeableConcept | Code or text describing goal Binding: SNOMEDCTClinicalFindings (example): Codes providing the details of a particular goal. This will generally be system or implementation guide-specific. In many systems, only the text element will be used. |
subject | Σ | 1..1 | Reference(US Core Patient Profile) | Who this goal is intended for |
target | I | 0..* | BackboneElement | Target outcome for the goal |
measure | ΣI | 0..1 | CodeableConcept | The parameter whose value is being tracked Binding: LOINCCodes (example): Codes to identify the value being tracked, e.g. body weight, blood pressure, or hemoglobin A1c level. |
detail[x] | ΣI | 0..1 | The target value to be achieved Binding: (unbound) (example): Codes to identify the target value of the focus to be achieved to signify the fulfillment of the goal. | |
detailQuantity | Quantity | |||
detailRange | Range | |||
detailCodeableConcept | CodeableConcept | |||
detailString | string | |||
detailBoolean | boolean | |||
detailInteger | integer | |||
detailRatio | Ratio | |||
due[x] | Σ | 0..1 | Reach goal on or before | |
dueDate | date | |||
expressedBy | Σ | 1..1 | Reference(US Core Patient Profile) | Who's responsible for creating Goal? |
note | 0..* | Annotation | Comments about the goal | |
Documentation for this format |
This structure is derived from PADIGoal
Summary
Mandatory: 1 element
Must-Support: 1 element
Slices
This structure defines the following Slices:
Differential View
This structure is derived from PADIGoal
Name | Flags | Card. | Type | Description & Constraints |
---|---|---|---|---|
Goal | 0..* | PADIGoal | Describes the intended objective(s) for a patient, group or organization | |
Slices for category | 2..* | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Slice: Unordered, Open by value:$this Binding: Care Experience Preferences (extensible) | |
category:type | S | 1..1 | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Required Pattern: At least the following |
coding | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex) | |
system | 1..1 | uri | Identity of the terminology system Fixed Value: http://hl7.org/fhir/us/pacio-adi/CodeSystem/PADIGoalCategoryCS | |
code | 1..1 | code | Symbol in syntax defined by the system Fixed Value: care-experience-preference | |
Documentation for this format |
Snapshot View
Name | Flags | Card. | Type | Description & Constraints |
---|---|---|---|---|
Goal | I | 0..* | PADIGoal | Describes the intended objective(s) for a patient, group or organization |
id | Σ | 0..1 | string | Logical id of this artifact |
meta | Σ | 0..1 | Meta | Metadata about the resource |
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created |
language | 0..1 | code | Language of the resource content Binding: CommonLanguages (preferred) Max Binding: AllLanguages: A human language. | |
text | S | 1..1 | Narrative | Text summary of the resource, for human interpretation |
contained | 0..* | Resource | Contained, inline Resources | |
extension | 0..* | Extension | Additional content defined by implementations | |
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored |
identifier | 0..* | Identifier | External Ids for this goal | |
lifecycleStatus | ?!SΣ | 1..1 | code | proposed | planned | accepted | active | on-hold | completed | cancelled | entered-in-error | rejected Binding: GoalLifecycleStatus (required) |
achievementStatus | Σ | 0..1 | CodeableConcept | in-progress | improving | worsening | no-change | achieved | sustaining | not-achieved | no-progress | not-attainable Binding: GoalAchievementStatus (preferred): Indicates the progression, or lack thereof, towards the goal against the target. |
Slices for category | SΣ | 2..* | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Slice: Unordered, Open by value:$this Binding: Care Experience Preferences (extensible) |
category:All Slices | Content/Rules for all slices | |||
id | 0..1 | string | Unique id for inter-element referencing | |
Slices for extension | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url | |
coding | Σ | 0..* | Coding | Code defined by a terminology system |
text | SΣ | 0..1 | string | Plain text representation of the concept |
category:type | SΣ | 1..1 | CodeableConcept | E.g. Treatment, dietary, behavioral, etc. Binding: GoalCategory (example): Codes for grouping and sorting goals. Required Pattern: At least the following |
id | 0..1 | string | Unique id for inter-element referencing | |
extension | 0..* | Extension | Additional content defined by implementations | |
coding | 1..* | Coding | Code defined by a terminology system Fixed Value: (complex) | |
id | 0..1 | string | Unique id for inter-element referencing | |
extension | 0..* | Extension | Additional content defined by implementations | |
system | 1..1 | uri | Identity of the terminology system Fixed Value: http://hl7.org/fhir/us/pacio-adi/CodeSystem/PADIGoalCategoryCS | |
version | 0..1 | string | Version of the system - if relevant | |
code | 1..1 | code | Symbol in syntax defined by the system Fixed Value: care-experience-preference | |
display | 0..1 | string | Representation defined by the system | |
userSelected | 0..1 | boolean | If this coding was chosen directly by the user | |
text | 0..1 | string | Plain text representation of the concept | |
id | 0..1 | string | Unique id for inter-element referencing | |
Slices for extension | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url | |
coding | Σ | 0..* | Coding | Code defined by a terminology system |
text | SΣ | 0..1 | string | Plain text representation of the concept |
priority | Σ | 0..1 | CodeableConcept | high-priority | medium-priority | low-priority Binding: GoalPriority (preferred): The level of importance associated with a goal. |
description | SΣ | 1..1 | CodeableConcept | Code or text describing goal Binding: SNOMEDCTClinicalFindings (example): Codes providing the details of a particular goal. This will generally be system or implementation guide-specific. In many systems, only the text element will be used. |
id | 0..1 | string | Unique id for inter-element referencing | |
Slices for extension | 0..* | Extension | Additional content defined by implementations Slice: Unordered, Open by value:url | |
padi-contextualValue-extension | 0..1 | (Complex) | Contextual Value URL: http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-contextualValue-extension | |
coding | Σ | 0..* | Coding | Code defined by a terminology system |
text | Σ | 0..1 | string | Plain text representation of the concept |
subject | SΣ | 1..1 | Reference(US Core Patient Profile) | Who this goal is intended for |
start[x] | Σ | 0..1 | When goal pursuit begins Binding: GoalStartEvent (example): Codes describing events that can trigger the initiation of a goal. | |
startDate | date | |||
startCodeableConcept | CodeableConcept | |||
target | SI | 0..* | BackboneElement | Target outcome for the goal |
id | 0..1 | string | Unique id for inter-element referencing | |
extension | 0..* | Extension | Additional content defined by implementations | |
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized |
measure | SΣI | 0..1 | CodeableConcept | The parameter whose value is being tracked Binding: LOINCCodes (example): Codes to identify the value being tracked, e.g. body weight, blood pressure, or hemoglobin A1c level. |
detail[x] | SΣI | 0..1 | The target value to be achieved Binding: (unbound) (example): Codes to identify the target value of the focus to be achieved to signify the fulfillment of the goal. | |
detailQuantity | Quantity | |||
detailRange | Range | |||
detailCodeableConcept | CodeableConcept | |||
detailString | string | |||
detailBoolean | boolean | |||
detailInteger | integer | |||
detailRatio | Ratio | |||
due[x] | SΣ | 0..1 | Reach goal on or before | |
dueDate | date S | |||
dueDuration | Duration | |||
statusDate | Σ | 0..1 | date | When goal status took effect |
statusReason | 0..1 | string | Reason for current status | |
expressedBy | SΣ | 1..1 | Reference(US Core Patient Profile) | Who's responsible for creating Goal? |
addresses | 0..* | Reference(Condition | Observation | MedicationStatement | NutritionOrder | ServiceRequest | RiskAssessment) | Issues addressed by this goal | |
note | S | 0..* | Annotation | Comments about the goal |
outcomeCode | 0..* | CodeableConcept | What result was achieved regarding the goal? Binding: SNOMEDCTClinicalFindings (example): The result of the goal; e.g. "25% increase in shoulder mobility", "Anxiety reduced to moderate levels". "15 kg weight loss sustained over 6 months". | |
outcomeReference | 0..* | Reference(Observation) | Observation that resulted from goal | |
Documentation for this format |
Other representations of profile: CSV, Excel, Schematron
Path | Conformance | ValueSet / Code |
Goal.language | preferred | CommonLanguages Max Binding: AllLanguages |
Goal.lifecycleStatus | required | GoalLifecycleStatus |
Goal.achievementStatus | preferred | GoalAchievementStatus |
Goal.category | extensible | PADICareExperiencePreferencesVS |
Goal.category:type | example | Pattern: care-experience-preference |
Goal.priority | preferred | GoalPriority |
Goal.description | example | SNOMEDCTClinicalFindings |
Goal.start[x] | example | GoalStartEvent |
Goal.target.measure | example | LOINCCodes |
Goal.target.detail[x] | example | |
Goal.outcomeCode | example | SNOMEDCTClinicalFindings |