This page is part of the PACIO Advance Directive Information Implementation Guide (v0.1.0: STU 1 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. The current version which supersedes this version is 1.0.0. For a full list of available versions, see the Directory of published versions

Patient Stories and Personas

Create in a digital form and make available for sharing and accessing advance directive information

Angie has Sickle Cell Disease. She worries that if she contracts COVID-19 and becomes unable to communicate with medical personnel, they won’t be familiar with her history and specific treatment needs.

She uses a consumer facing tool to create a digital advance directive or upload a scanned copy of her paper advance directive document. Her interoperable digital advance directive information is made available by being stored in a registry/repository/HIE/QHIN/EHR.

Angie shares her advance directive information with her medical proxy/healthcare agent and primary care physician so if either are contacted by a treating provider in an emergency, they can make her advance directive accessible to inform treatment.