FHIR for FAIR - FHIR Implementation Guide
0.1.0 - STU 1 Ballot

This page is part of the FHIR for FAIR - FHIR Implementation Guide (v0.1.0: STU 1 (FHIR R4b) Ballot 1) based on FHIR v4.1.0. The current version which supercedes this version is 1.0.0. For a full list of available versions, see the Directory of published versions

About this version

What is in

  1. General recommendations for implementing with HL7 FHIR the FAIR principles and the RDA indicators.

  2. Description of some representative Real World Cases  

  3. Conformance resources for the representation of some study and subject level metadata

  4. Examples associated to the representative Real World Cases

Not in this version

  1. FHIR representation of domain / use case specific data (e.g. genomics; cancer;..).

  2. Security protocols (e.g. Data is accessible through an access protocol that supports authentication and authorization)

  3. Consent/Security Labels management

  4. FHIR end point discovery (findability)

  5. Provenance resource profiling (Metadata includes provenance information according to community-specific standards)

To be further discussed 

  1. Persistency of identifiers (DOI)

  2. Distinct and identifiable data and metadata FAIR data objects

  3. Level of maturity of some of the Evidence based resources.

  4. “Metadata is guaranteed to remain available after data is no longer available”

  5. “FAIR-compliant vocabularies”