Person-Centered Outcomes (PCO) Implementation Guide
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This page is part of the Person-Centered Outcomes (PCO) Implementation Guide (v1.0.0-ballot: STU 1 Ballot 1) based on FHIR (HL7® FHIR® Standard) R4. No current official version has been published yet. For a full list of available versions, see the Directory of published versions

Artifacts Summary

This page provides a list of the FHIR artifacts defined as part of this implementation guide.

Knowledge Artifacts: Measure

These define measures as part of content in this implementation guide.

Person-Centered Goal Follow-Up

Measure 2 - Goal Follow-up: % of individuals 18 years of age or older with a complex care need who received follow-up on their PCO goal within two weeks to six months of when the PCO goal and GAS or PROM were identified.

Person-Centered Goal Identification

Measure 1 - Goal Identification: % of individuals 18 years of age and older with a complex care need who had a PCO goal identified resulting in completion of goal attainment scaling (GAS) or a Patient-Reported Outcome Measure (PROM) and development of an action plan.

Knowledge Artifacts: Libraries

These define logic, asset collections and other libraries as part of content in this implementation guide.

FHIRHelpers

FHIR helper expressions

GoalAttainmentLogic

Shared logic for Goal Attainment Scaling.

GoalFollowUpMeasure

CQL logic for the Goal Follow-up Measure

GoalIdentificationMeasure

CQL logic for the Goal Identification Measure

PCOCommon

Shared CQL expressions for all Person-Centered Outcome libraries.

WhatMattersLogic

CQL logic for What Matters concepts.

Structures: Questionnaires

These define forms used by systems conforming to this implementation guide to capture or expose data to end users.

Generalized Anxiety Disorder (GAD-7)

Generalized anxiety disorder 7-item assessment

PHQ-9 Depression Assessment

Depression assessment 9-item panel

Personal Health Inventory

A Questionnaire for a person's assessment of what matters most in their health and well-being.

Structures: Resource Profiles

These define constraints on FHIR resources for systems conforming to this implementation guide.

Goal Attainment Scaling (GAS) score observation

A GAS score indicates how a patient, caregiver, or practitioner rated goal progress using goal attainment scaling.

Goal Barrier

Assessment observation about a barrier, bothersome symptom or health concern that interferes with goal achievement.

Patient-Reported Outcome Measure (PROM) score observation

This observation records how a patient's progress is rated using a PROM assessment score.

Person-Centered Care Plan

A person-centered care plan SHALL reference a person-centered goal and SHALL include action steps that support progress toward achievement of the plan's goals and desired outcomes. A plan SHOULD address the person's stated priorities for what matters most to them. Action steps may include both treatment procedures and self-care steps identified by the person.

Person-Centered GAS Goal

A person-centered goal using Goal Attainment Scaling (GAS) to measure its progress and achievement.

Person-Centered Goal

A person-centered goal is based on a values conversation with a patient to address what matters most to them.

Person-Centered PROM Goal

Person-centered goal using a Patient-Reported Outcome Measure (PROM) score to measure its progress and achievement.

Personal Priorities Organizer

Personal Priorities Organizer is used to represent a set of person-centered goals, what matters assessment, or barriers in a preferred ranked order.

Readiness Assessment

Assessment of a person's readiness for change including importance and confidence for making that change.

What Matters Assessment

Assessment observation for What Matters to a person. May be a panel assessment with member observations.

Structures: Extension Definitions

These define constraints on FHIR data types for systems conforming to this implementation guide.

Goal Attainment Scaling Extension

Goal Attainment Scaling (GAS) is an extension used to specify five levels of attainment for a person-centered goal.

Terminology: Value Sets

These define sets of codes used by systems conforming to this implementation guide.

Goal Attainment Scaling (GAS) Score

The score indicates how a patient, caregiver, or practitioner rated progress on goal attainment scaling.

Goal Barrier Assessment Codes

Terminology codes for goal barrier assessment

Goal Barrier Types Example

Example value set containing types of goal barriers.

PCO Goal Domain Categories

Value set to identify the goal domain category for PCO resources.

PROM Target Measure Scores

Target measure score codes used to track progress on patient-reported outcome measures (PROMs).

Person-Centered Categories

Categories for person-centered assessment or goals.

Readiness Assessment Codes

Terminology codes for readiness assessment types.

Well-Being Domains Example

Example value set containing well-being domains from a Personal Health Inventory.

What Matters Codes Example

Example value set containing codes for What Matters observations.

Terminology: Code Systems

These define new code systems used by systems conforming to this implementation guide.

PCO Goal Domains

Goal domain codes used to identify the category for PCO resources.

Person-Centered Outcome Concepts

Code system to identify resource codes and category codes for Person-Centered Outcomes.

Personal Health Inventory Concepts

Code system to identify Personal Health Inventory concepts.

Readiness Assessment Concepts

Code system to types of readiness for change.

What Matters Concepts

Code system to identify observation codes for What Matters assessment.

Example: Example Instances

These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like.

Care Plan for person-centered goal

Care Plan for a person-centered goal with action steps for achieving what matters most to that person.

Care Plan: Action step for mindfulness program

Care Plan activity: Mindfulness coaching to support anxiety management

GAD-7 PROM Baseline Score

Baseline GAD-7 PROM score observation recorded by a Patient showing goal progress.

GAD-7 PROM Follow-up Score

Follow-up GAD-7 PROM score observation recorded by a Patient showing goal progress.

GAS Baseline Score

Baseline GAS score observation at start of goal.

GAS Patient Follow-up Score

Follow-up GAS score observation recorded by a Patient showing goal progress.

GAS Practitioner Follow-up Score

Follow-up GAS score observation recorded by a Practitioner showing goal progress.

Goal Barrier: Anxiety in social situations, coded value

Barrier for goal achievement

Goal Barrier: Don't like to drive

Barrier with a free-text description

Goal with GAD-7 PROM Outcome

Person-centered goal with a PROM outcome target for GAD-7 score.

Goal with GAS

Person-centered goal with GAS extensions

Goal without GAS Extensions

Person-centered goal with GAS target measure and without GAS extensions

Patient Dorothy Jones

Dorothy Jones

Personal Priorities List

Patient selecton of the most important items for well-being, goal barrier, and the most bothersome care trade-off

Practitioner Health & Wellness Coach

Maria Gonzalez, NBC-HWC

Practitioner Primary Care Physician

John Anderson, MD

Readiness Assessment panel

Readiness assessment with two members

Readiness Assessment: Confidence

Readiness assessment of confidence to achieve a goal

Readiness Assessment: Importance

Readiness assessment of importance for a goal

What Matters Focus: Family & Friends

What Matters observation recorded by a Patient to indicate their focus area for well-being.

What Matters Statement as Free-Text

What Matters observation added by a Patient to record a free-text statement about a well-being focus area.

What Matters: Family & Friends (Panel)

What Matters assessment observation panel.

What Matters: Family & Friends, Future Changes

What Matters assessment observation for future changes description.

What Matters: Family & Friends, Future Rating

What Matters assessment observation for future rating.

What Matters: Family & Friends, Now Rating

What Matters assessment observation for now rating.

What Matters: Food and Drink (Panel)

What Matters assessment observation panel.

What Matters: Food and Drink, Future Rating

What Matters assessment observation for future rating.

What Matters: Food and Drink, Now Rating

What Matters assessment observation for now rating.

What Matters: Food and Drink, Now Reasons

What Matters assessment observation for now reasons description.