PACIO Advance Directive Interoperability Implementation Guide
0.1.0 - STU 1 Ballot
PACIO Advance Directive Interoperability Implementation Guide
0.1.0 - STU 1 Ballot
This page is part of the PACIO Advance Directive Information Implementation Guide (v0.1.0: STU 1 Ballot 1) based on FHIR R4. . For a full list of available versions, see the Directory of published versions 
@prefix fhir: <http://hl7.org/fhir/> .
@prefix loinc: <http://loinc.org/rdf#> .
@prefix owl: <http://www.w3.org/2002/07/owl#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .
# - resource -------------------------------------------------------------------
a fhir:Composition;
fhir:nodeRole fhir:treeRoot;
fhir:Resource.id [ fhir:value "Example-McBee-PACPComposition1"];
fhir:Resource.meta [
fhir:Meta.profile [
fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/PADI-PACPComposition";
fhir:index 0;
fhir:link <http://hl7.org/fhir/us/pacio-adi/StructureDefinition/PADI-PACPComposition> ]
];
fhir:Resource.language [ fhir:value "en-US"];
fhir:DomainResource.text [
fhir:Narrative.status [ fhir:value "extensions" ];
fhir:Narrative.div "<div xmlns=\"http://www.w3.org/1999/xhtml\" xml:lang=\"en-US\" lang=\"en-US\"><p><b>Generated Narrative</b></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource \"Example-McBee-PACPComposition1\" (Language \"en-US\") </p><p style=\"margin-bottom: 0px\">Profile: <a href=\"StructureDefinition-PADI-PACPComposition.html\">ADI Personal Advance Care Plan Composition</a></p></div><p><b>Version Number</b>: 1</p><p><b>Data Enterer</b>: <a href=\"Patient-Example-McBee-Patient1.html\">Patient/Example-McBee-Patient1</a> \" MCBEE\"</p><p><b>Authorization</b>: <span>: Authorization Consent</span></p><p><b>Effective Date</b>: 2022-01-01 --> (ongoing)</p><p><b>Informant</b>: <a href=\"RelatedPerson-Example-McBee-HealthcareAgent1.html\">RelatedPerson/Example-McBee-HealthcareAgent1</a> \" SALLY\"</p><p><b>Information Recipient</b>: <a href=\"RelatedPerson-Example-McBee-HealthcareAgent1.html\">RelatedPerson/Example-McBee-HealthcareAgent1</a> \" SALLY\"</p><p><b>Participant</b>: <a href=\"RelatedPerson-Example-McBee-HealthcareAgent1.html\">RelatedPerson/Example-McBee-HealthcareAgent1</a> \" SALLY\"</p><p><b>Performer</b>: <span>: Advance Directives, Inc.</span></p><p><b>identifier</b>: id: 20130607100315-CCDA-CCD</p><p><b>status</b>: final</p><p><b>type</b>: Patient Personal advance care plan <span style=\"background: LightGoldenRodYellow; margin: 4px; border: 1px solid khaki\"> (<a href=\"https://loinc.org/\">LOINC</a>#81334-5)</span></p><p><b>category</b>: Advance Directive <span style=\"background: LightGoldenRodYellow; margin: 4px; border: 1px solid khaki\"> (<a href=\"https://loinc.org/\">LOINC</a>#75320-2)</span></p><p><b>date</b>: 2018-08-28T08:49:58.313-04:00</p><p><b>author</b>: <a href=\"Patient-Example-McBee-Patient1.html\">Patient/Example-McBee-Patient1</a> \" MCBEE\"</p><p><b>title</b>: Personal Advance Care Plan Document for Roger McBee</p><p><b>custodian</b>: <a href=\"Organization-Example-McBee-OrganizationCustodian1.html\">Organization/Example-McBee-OrganizationCustodian1</a> \"MyDirectives.com\"</p></div>"
];
fhir:DomainResource.extension [
fhir:index 0;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-versionNumber-extension" ];
fhir:Extension.valueInteger [ fhir:value "1"^^xsd:integer ]
], [
fhir:index 1;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-dataEnterer-extension" ];
fhir:Extension.valueReference [
fhir:Reference.reference [ fhir:value "Patient/Example-McBee-Patient1" ] ]
], [
fhir:index 2;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-authorization-extension" ];
fhir:Extension.valueReference [
fhir:Reference.identifier [
fhir:Identifier.value [ fhir:value "123456789" ] ];
fhir:Reference.display [ fhir:value "Authorization Consent" ] ]
], [
fhir:index 3;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-effective-date-extension" ];
fhir:Extension.valuePeriod [
fhir:Period.start [ fhir:value "2022-01-01"^^xsd:date ] ]
], [
fhir:index 4;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-informant-extension" ];
fhir:Extension.valueReference [
fhir:Reference.reference [ fhir:value "RelatedPerson/Example-McBee-HealthcareAgent1" ] ]
], [
fhir:index 5;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-informationRecipient-extension" ];
fhir:Extension.valueReference [
fhir:Reference.reference [ fhir:value "RelatedPerson/Example-McBee-HealthcareAgent1" ] ]
], [
fhir:index 6;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-participant-extension" ];
fhir:Extension.valueReference [
fhir:Reference.reference [ fhir:value "RelatedPerson/Example-McBee-HealthcareAgent1" ] ]
], [
fhir:index 7;
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-performer-extension" ];
fhir:Extension.valueReference [
fhir:Reference.display [ fhir:value "Advance Directives, Inc." ] ]
];
fhir:Composition.identifier [
fhir:Identifier.system [ fhir:value "urn:oid:2.16.840.1.113883.4.823.1.7124" ];
fhir:Identifier.value [ fhir:value "20130607100315-CCDA-CCD" ]
];
fhir:Composition.status [ fhir:value "final"];
fhir:Composition.type [
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:81334-5;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "81334-5" ];
fhir:Coding.display [ fhir:value "Patient Personal advance care plan" ] ]
];
fhir:Composition.category [
fhir:index 0;
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:75320-2;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "75320-2" ];
fhir:Coding.display [ fhir:value "Advance Directive" ] ]
];
fhir:Composition.subject [
fhir:Reference.reference [ fhir:value "Patient/Example-McBee-Patient1" ]
];
fhir:Composition.date [ fhir:value "2018-08-28T08:49:58.313-04:00"^^xsd:dateTime];
fhir:Composition.author [
fhir:index 0;
fhir:Reference.reference [ fhir:value "Patient/Example-McBee-Patient1" ]
];
fhir:Composition.title [ fhir:value "Personal Advance Care Plan Document for Roger McBee"];
fhir:Composition.custodian [
fhir:Reference.reference [ fhir:value "Organization/Example-McBee-OrganizationCustodian1" ]
];
fhir:Composition.section [
fhir:index 0;
fhir:Element.extension [
fhir:index 0;
fhir:Element.extension [
fhir:index 0;
fhir:Extension.url [ fhir:value "Clause" ];
fhir:Extension.valueMarkdown [ fhir:value "I am appointing the person or persons below as my healthcare agent and, if applicable, as my\nalternate healthcare agent(s), and I am granting to each of them the legal authority to make\nmedical treatment decisions on my behalf and to consult with my physician and others. The\npower to make medical treatment decisions that I am granting to my healthcare agent(s) is\nexpressly subject to, and limited by, the choices that I have expressed elsewhere.\nIf my medical treatment choices are not clear, I am authorizing and directing my healthcare\nagent to make decisions in my best interests and based on what is known of my wishes." ] ];
fhir:Extension.url [ fhir:value "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/padi-clause-extension" ] ];
fhir:Composition.section.title [ fhir:value "Appointment of a Primary Healthcare Agent and Alternate Healthcare Agents" ];
fhir:Composition.section.code [
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:81335-2;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "81335-2" ];
fhir:Coding.display [ fhir:value "Healthcare Agent" ] ] ];
fhir:Composition.section.text [
fhir:Narrative.status [ fhir:value "additional" ];
fhir:Narrative.div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>It is very important for you to discuss your medical treatment goals and wishes with your healthcare agent, your family, and your medical care providers.</b> Keep in mind that advance medical directives are simply expressions of your medical treatment goals and preferences. There is no guarantee that your medical care providers will follow all of your wishes, but one thing is certain: <b>If your advance medical directives cannot be quickly located and retrieved in a time of need, then medical care providers, your family and friends will not be able to take your wishes into consideration when they make critical decisions regarding your treatment.</b></p><p><i>IF THIS PART OF THE uADD™ IS LEFT BLANK, I DO NOT WANT TO DESIGNATE A HEALTHCARE AGENT AT THIS TIME, AND I DO NOT WANT A DEFAULT HEALTHCARE AGENT DESIGNATED FOR ME UNDER APPLICABLE LAW. I TRUST THE DOCTORS AND NURSES TREATING ME TO MAKE MEDICAL TREATMENT DECISIONS REGARDING MY TREATMENT AND CARE.</i></p><p>I am appointing the person or persons below as my healthcare agent and, if applicable, as my alternate healthcare agent(s), and I am granting to each of them the legal authority to make medical treatment decisions on my behalf and to consult with my physician and others. The power to make medical treatment decisions that I am granting to my healthcare agent(s) is expressly subject to, and limited by, the choices that I have expressed elsewhere in my uADD. If my medical treatment choices are not clear, I am authorizing and directing my healthcare agent to make decisions in my best interests and based on what is known of my wishes.</p><p><b>Primary Healthcare Agent</b></p><p>The person I choose as my Primary Healthcare Agent is:</p><p><i>Sally Bobbins</i></p><p><i>SallyBobbins@example.com</i></p><p><i>[SELECTED to act as a healthcare agent on 3/23/2018, at 9:13 AM CST]</i></p><p><i>[As of 12/6/2019, at 1:11 AM CDT, a response is still PENDING]</i></p><p><b>First Alternate Healthcare Agent</b></p><p>If this healthcare agent is unable or unwilling to make medical treatment decisions for me, or if my spouse is designated as my primary healthcare agent and our marriage is annulled, or we are divorced or legally separated, then my next choice for a healthcare agent is:</p><p><i>S. Leonard Susskind (Friend)</i></p><p><i>ssuskind@example.com</i></p><p><i>[SELECTED to act as a healthcare agent on 3/23/2018, at 9:13 AM CST]</i></p><p><i>[ACCEPTED to act as a healthcare agent on 3/23/2018, at 9:14 AM CST]</i></p><p><b>My Healthcare Agent’s General Authority</b></p><p>Subject to my medical treatment choices expressed elsewhere in this uADD™ and applicable law that requires otherwise, <i>I grant to my healthcare agent the power to make all choices and medical treatment decisions for me.</i></p><p>Here are some specific instructions that expand or limit the powers I have just granted to my healthcare agent(s):</p><ul><li>If my healthcare agent's decisions conflict with my instructions, <i>I want my healthcare agent's decisions to take priority.</i></li><li>If I cannot express my own wishes for medical treatment, <i>I would like the doctors treating me, as well as my healthcare agent if I have chosen one, to make decisions based as much as possible and appropriate on my instructions below.</i></li><li>If at some point in the future I am declared incompetent, <i>I DO NOT want to be allowed to override these preferences. I want my doctors to follow the preferences I express in this document.</i></li></ul><p>Unless I have stated otherwise somewhere else in this uADD™, I understand that my healthcare agent may reconsider my medical treatment choices expressed above in light of my other instructions contained elsewhere in this uADD™ or new medical information.</p></div>" ];
fhir:Composition.section.entry [
fhir:index 0;
fhir:Reference.reference [ fhir:value "RelatedPerson/Example-McBee-HealthcareAgent1" ] ], [
fhir:index 1;
fhir:Reference.reference [ fhir:value "RelatedPerson/Example-McBee-HealthcareAgent2" ] ], [
fhir:index 2;
fhir:Reference.reference [ fhir:value "Consent/Example-McBee-HealthcareAgentConsent" ] ]
], [
fhir:index 1;
fhir:Composition.section.title [ fhir:value "Patient Goals, Preferences, and Priorities for Care Experience" ];
fhir:Composition.section.code [
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:81338-6;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "81338-6" ];
fhir:Coding.display [ fhir:value "Patient Goals, Preferences, and Priorities for Care Experience" ] ] ];
fhir:Composition.section.text [
fhir:Narrative.status [ fhir:value "additional" ];
fhir:Narrative.div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><i>MyDirectives® offers people a list of optional questions that can be answered by typing text in a text box or by uploading a video or audio file for each question. Only those questions answered by Roger Rienman McBee appear here. For a complete list of questions in My Thoughts, please visit www.MyDirectives.com.</i></p><p><b>In case I’m being cared for by a person(s) who doesn't know me very well, I’d like my following thoughts to be known.</b></p><p><b>My likes / joys:</b> Here are some examples of the things that I would like to have near me, music that I’d like to hear, and other details of my care that would help to keep me happy and relaxed:</p><p><i>Like Bach, especially the cantatas. St. Martin in the Fields</i></p><p></p><p><b>How to care for me:</b> If I become incapacitated and cannot express myself, here is what I would like to tell my healthcare agent, family and friends about how I would like for them to care for me:</p><p><i>I don’t like being treated like an object. I would like to be greeted like a person before working on me.</i></p><p></p><p><b>Please attempt to notify someone from my religion at the following phone number:</b> (If I have included one)</p><p><i>Not Religious</i></p><p></p><p><b>My unfinished business:</b> If it appears that I am approaching the end of my life, and I cannot communicate with persons around me, I would want my doctors and nurses, my family, and my friends to know about some unfinished business that I need to address:</p><p><i>I am awaiting a message from the Noble Committee. Please keep me alive if I look promising this year.</i></p></div>" ];
fhir:Composition.section.entry [
fhir:index 0;
fhir:Reference.reference [ fhir:value "Goal/Example-McBee-CareExperiencePreference1" ] ], [
fhir:index 1;
fhir:Reference.reference [ fhir:value "Goal/Example-McBee-CareExperiencePreference2" ] ], [
fhir:index 2;
fhir:Reference.reference [ fhir:value "Goal/Example-McBee-CareExperiencePreference3" ] ], [
fhir:index 3;
fhir:Reference.reference [ fhir:value "Goal/Example-McBee-CareExperiencePreference4" ] ], [
fhir:index 4;
fhir:Reference.reference [ fhir:value "List/Example-McBee-PersonalPrioritiesOrganizer1" ] ]
], [
fhir:index 2;
fhir:Composition.section.title [ fhir:value "Goals, Priorities, and Preferences under certain health condition" ];
fhir:Composition.section.code [
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:81336-0;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "81336-0" ];
fhir:Coding.display [ fhir:value "Patient Goals, preferences, and priorities under certain health conditions" ] ] ];
fhir:Composition.section.text [
fhir:Narrative.status [ fhir:value "additional" ];
fhir:Narrative.div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>My Advance Care Goals</b></p><p>If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:</p><ol><li><i>Being at peace with my God</i></li><li><i>Dying at home</i></li><li><i>Being able to feed, bathe, and take care of myself</i></li><li><i>Being free from pain</i></li><li><i>Resolving conflicts</i></li><li><i>Being with my family</i></li><li><i>Not being a financial burden to my family</i></li></ol><p>If I am having significant pain or suffering, <i>I would like my doctors to consult a Supportive and Palliative Care Team to help treat my physical, emotional and spiritual discomfort, and to support my family.</i></p><p><b>My Preferences in Specific Circumstances</b></p><p>In addition to the general advance care goals provided above, below are specific treatment preferences with respect to certain specific circumstances or situations.</p><p></p><p>If my health ever deteriorates due to a terminal illness, and my doctors believe I will not be able to interact meaningfully with my family, friends, or surroundings, <i>I prefer that they stop all life-sustaining treatments and let me die as gently as possible. I realize that I will not receive life-sustaining treatments including but not limited to breathing machines, blood transfusions, dialysis, heart machines, and IV drugs to keep my heart working. I also realize that medical personnel will not attempt cardiopulmonary resuscitation (CPR), and they will allow me to die naturally.</i></p><p></p><p>If my response above indicates that I do not want life-sustaining treatments,</p><p>I expressly authorize my attending physician to withhold or withdraw artificial nutrition and hydration and instruct my healthcare agent (or, if I have not designated a healthcare agent, my default surrogate), my family and the doctors and nurses who are taking care of me to respect this request.</p><p></p><p>If I have a severe, irreversible brain injury or illness and can’t dress, feed, or bathe myself, or communicate my medical wishes, but doctors can keep me alive in this condition for a long period of time, <i>I would like for them to keep trying life-sustaining treatments for 2 months.</i></p><p></p><p>Although I understand that, depending on the situation and circumstances, medical personnel may not be able to follow my wishes, here are my general thoughts on cardiopulmonary resuscitation (CPR):</p><p><i>I do not want CPR attempted.</i></p><p><i>I want my healthcare agent to make the decision, but if my chances are slim to none that I'll leave the hospital, even if they resuscitate me, then I absolutely do not want CPR.</i></p><p></p><p><b>Other Instructions</b></p><p>If it were possible to choose, here is where I would like to spend my final days:</p><p><i>At home.I would like to receive hospice care at home if possible.</i></p></div>" ];
fhir:Composition.section.entry [
fhir:index 0;
fhir:Reference.reference [ fhir:value "CarePlan/Example-McBee-PreferenceCarePlan1" ] ]
], [
fhir:index 3;
fhir:Composition.section.title [ fhir:value "Goals, Preferences and Priorities upon Death" ];
fhir:Composition.section.code [
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:81337-8;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "81337-8" ];
fhir:Coding.display [ fhir:value "Patient Goals, Preferences, and Priorities Upon Death" ] ] ];
fhir:Composition.section.text [
fhir:Narrative.status [ fhir:value "additional" ];
fhir:Narrative.div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>Consent to Donate</b></p><p><i>I don’t want to donate my organs.</i></p><p></p><p><b>Autopsy</b></p><p><i>I want an autopsy if my doctor thinks it will help others.</i></p><p><b>Here are my thoughts on funeral or burial plans:</b></p><p>If I were to pass away: <i>I have a plot. My wife has the details, also my secretary, Ms. Williams, will know.</i></p></div>" ];
fhir:Composition.section.entry [
fhir:index 0;
fhir:Reference.reference [ fhir:value "Observation/Example-McBee-OrganDonationObservation1" ] ], [
fhir:index 1;
fhir:Reference.reference [ fhir:value "Observation/Example-McBee-AutopsyObservation1" ] ], [
fhir:index 2;
fhir:Reference.reference [ fhir:value "Goal/Example-McBee-PersonalInterventionPreference8" ] ]
], [
fhir:index 4;
fhir:Composition.section.title [ fhir:value "Witnesses and Notary" ];
fhir:Composition.section.code [
fhir:CodeableConcept.coding [
fhir:index 0;
a loinc:81339-4;
fhir:Coding.system [ fhir:value "http://loinc.org" ];
fhir:Coding.code [ fhir:value "81339-4" ];
fhir:Coding.display [ fhir:value "Witness and Notary Document" ] ] ];
fhir:Composition.section.text [
fhir:Narrative.status [ fhir:value "additional" ];
fhir:Narrative.div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>I am emotionally and mentally competent to make this uADD. I understand the purpose and effect of this uADD, I agree with everything that is written in this uADD, and I have made this uADD knowingly, willingly and after careful deliberation.</b></p><table><tbody><tr><td><b>Signature:</b></td><td>Roger R. McBee</td></tr><tr><td><b>Date:</b></td><td>8/28/2018</td></tr></tbody></table><p></p><p><b>Statement of Witnesses</b></p><p></p><p>I declare that the person who signed this uADD, or who asked another to sign this uADD on his/her behalf, is the individual identified in the document, and he/she did so in my presence or otherwise provided satisfactory proof to me of his/her identity. I believe him/her to be of sound mind and at least 18 years of age. I personally witnessed him/her sign this document or ask the person indicated to do so, or I received proof of his/her identity that I believe is adequate, and I believe that he/she did so voluntarily. By signing this document as a witness, I certify that I am:</p><ol><li>At least 18 years of age.</li><li>Not related to the person signing this document by blood, marriage or adoption.</li><li>Not a healthcare agent appointed by the person signing this document.</li><li>Not directly financially responsible for that person’s healthcare.</li><li>Not a healthcare provider directly serving the person at this time.</li><li>Not an employee (other than a social worker or chaplain), officer, director, or partner of a healthcare provider (or any parent organization of such healthcare provider) directly serving the person at this time.</li><li>Not aware that I am entitled to or have a claim against the person’s estate.</li></ol><p></p><table><tbody><tr><td><b>Witness Number:</b></td><td></td></tr><tr><td><b>Signature:</b></td><td></td></tr><tr><td>Date:</td><td></td></tr></tbody></table></div>" ]
].
# - ontology header ------------------------------------------------------------
a owl:Ontology;
owl:imports fhir:fhir.ttl.
IG © 2021+ HL7 Patient Empowerment Working Group. Package hl7.fhir.us.pacio-adi#0.1.0 based on FHIR 4.0.1. Generated 2021-12-06
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