This page is part of the PACIO Advance Directive Information Implementation Guide (v0.1.0: STU 1 Ballot 1) based on FHIR R4. . For a full list of available versions, see the Directory of published versions

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: Example-Smith-Johnson-PreferenceCarePlan3 - XML Representation

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<CarePlan xmlns="http://hl7.org/fhir">
  <id value="Example-Smith-Johnson-PreferenceCarePlan3"/>
  <meta>
    <profile
             value="http://hl7.org/fhir/us/pacio-adi/StructureDefinition/PADI-PreferenceCarePlan"/>
  </meta>
  <text>
    <status value="additional"/>
    <div xmlns="http://www.w3.org/1999/xhtml"><p><b>status</b>: active</p><p><b>intent</b>: proposal</p><p><b>category</b>: <span title="Codes: {http://snomed.info/sct 736366004}">Advance care plan</span></p><p><b>subject</b>: <a href="Patient-Example-Smith-Johnson-Patient1.html">Betsy Smith-Johnson</a> ; BetsySJ@example.com; gender: female; birthDate: 1950-11-15</p><p><b>addresses</b>: <span>Terminal illness, lack of meaningful interaction</span></p><p><b>goal</b>:</p><ul><li><a href="Goal-Example-Smith-Johnson-PersonalGoal1.html"><span title="Codes: {http://loinc.org 81378-2}">Goals, preferences, and priorities under certain health conditions [Reported]</span></a>; <span title="Codes: ">If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me: Avoiding prolonged dependence on machines, Not being a physical burden to my family, Dying at home</span></li><li><a href="Goal-Example-Smith-Johnson-CareExperiencePreference1.html"><span title="Codes: {http://loinc.org 75775-7}">Decision to inform doctors and nurses about the role religion, faith, or spirituality play in my life [Reported]</span></a>; <span title="Codes: ">Here are some thoughts that I would like for my medical care team and my healthcare agent(s) to know about the role that religion, faith or spirituality play in my life: I am Catholic, please call Father Mark at Saint Catherine's on Main Street.</span></li><li><a href="Goal-Example-Smith-Johnson-CareExperiencePreference2.html"><span title="Codes: {http://loinc.org 81360-0}">My likes and joys [Reported]</span></a>; <span title="Codes: ">Here are some examples of the things that I would like to have near me, music that I’d like to hear, and other details of my care that would help to keep me happy and relaxed: I love the smell of lavender and the feeling of sunshine on my face.</span></li><li><a href="Goal-Example-Smith-Johnson-CareExperiencePreference3.html"><span title="Codes: {http://loinc.org 81362-6}">My dislikes and fears [Reported]</span></a>; <span title="Codes: ">Here is a list of things that I would like to avoid if at all possible, people that I don’t wish to see, and concerns I have about particular family members, pets, and so on: I do not like my feet to be cold.</span></li><li><a href="Goal-Example-Smith-Johnson-CareExperiencePreference4.html"><span title="Codes: {http://loinc.org 81380-8}">Goals, preferences, and priorities for care experience [Reported]</span></a>; <span title="Codes: ">How to care for me: If I become incapacitated and cannot express myself, here is what I would like to tell my healthcare agent, family and friends about how I would like for them to care for me: I want photos of my family where I can see them.</span></li><li><a href="Goal-Example-Smith-Johnson-CareExperiencePreference5.html"><span title="Codes: {http://loinc.org 81364-2}">Religious beliefs [Reported]</span></a>; <span title="Codes: ">If I appear to be approaching the end of my life, here are some things that I would like for my caregivers to know about my faith and my religion. Please call Father Mark if my condition warrants the services of a priest.</span></li><li><a href="Goal-Example-Smith-Johnson-CareExperiencePreference7.html"><span title="Codes: {http://loinc.org 81366-7}">Unfinished business [Reported]</span></a>; <span title="Codes: ">If it appears that I am approaching the end of my life, and I cannot communicate with persons around me, I would want my doctors and nurses, my family, and my friends to know about some unfinished business that I need to address: I want my sister and I to talk again, and miss her. I wish we hadn't disagreed all those years ago and regret the time it has cost us. I'd like to see her face if I were very ill and needed the comfort of family at my side.</span></li><li><a href="Goal-Example-Smith-Johnson-PersonalInterventionPreference1.html"><span title="Codes: {http://loinc.org 75776-5}">Preference on consulting a supportive and palliative care team to help treat physical, emotional, and spiritual discomfort and support family [Reported]</span></a>; <span title="Codes: ">If I am having significant pain or suffering, I would like my doctors to consult a Supportive and Palliative Care Team to help treat my physical, emotional and spiritual discomfort, and to support my family.</span></li><li><a href="Goal-Example-Smith-Johnson-PersonalInterventionPreference3.html"><span title="Codes: {http://loinc.org 75778-1}">Information to tell doctors if I have a severe, irreversible brain injury or illness and can't dress, feed, or bathe myself, or communicate my medical wishes, but can be kept alive [Reported]</span></a>; <span title="Codes: ">If my health ever deteriorates due to a terminal illness, and my doctors believe I will not be able to interact meaningfully with my family, friends, or surroundings, I would like for them to keep trying life-sustaining treatments until my healthcare agent decides it is time to stop and such treatments and let me die gently.</span></li><li><a href="Goal-Example-Smith-Johnson-PersonalInterventionPreference5.html"><span title="Codes: {http://loinc.org 75780-7}">Preferred location to spend final days if possible to choose [Reported]</span></a>; <span title="Codes: ">If it were possible to choose, here is where I would like to spend my final days: At home.I would like to receive hospice care at home if possible.</span></li></ul></div>
  </text>
  <status value="active"/>
  <intent value="proposal"/>
  <category>
    <coding>
      <system value="http://snomed.info/sct"/>
      <code value="736366004"/>
      <display value="Advance care plan"/>
    </coding>
  </category>
  <subject>
    <reference value="Patient/Example-Smith-Johnson-Patient1"/>
  </subject>
  <addresses>
    <display value="Terminal illness, lack of meaningful interaction"/>
  </addresses>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-PersonalGoal1"/>
  </goal>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-CareExperiencePreference1"/>
  </goal>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-CareExperiencePreference2"/>
  </goal>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-CareExperiencePreference3"/>
  </goal>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-CareExperiencePreference4"/>
  </goal>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-CareExperiencePreference5"/>
  </goal>
  <goal>
    <reference value="Goal/Example-Smith-Johnson-CareExperiencePreference7"/>
  </goal>
  <goal>
    <reference
               value="Goal/Example-Smith-Johnson-PersonalInterventionPreference1"/>
  </goal>
  <goal>
    <reference
               value="Goal/Example-Smith-Johnson-PersonalInterventionPreference3"/>
  </goal>
  <goal>
    <reference
               value="Goal/Example-Smith-Johnson-PersonalInterventionPreference5"/>
  </goal>
</CarePlan>