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Patient Care icon Work GroupMaturity Level: 2 Trial UseSecurity Category: Patient Compartments: Patient

Detailed Descriptions for the elements in the FamilyMemberHistory resource.

FamilyMemberHistory
Element Id FamilyMemberHistory
Definition

Significant health conditions for a person related to the patient relevant in the context of care for the patient.

Short Display Information about patient's relatives, relevant for patient
Cardinality 0..*
Type DomainResource
Summary false
Invariants
Defined on this element
fhs-1Rule Can have age[x] or born[x], but not bothage.empty() or born.empty()
fhs-2Rule Can only have estimatedAge if age[x] is presentage.exists() or estimatedAge.empty()
fhs-3Rule Can have age[x] or deceased[x], but not bothage.empty() or deceased.empty()
FamilyMemberHistory.identifier
Element Id FamilyMemberHistory.identifier
Definition

Business identifiers assigned to this family member history by the performer or other systems which remain constant as the resource is updated and propagates from server to server.

Short Display External Id(s) for this record
Note This is a business identifier, not a resource identifier (see discussion)
Cardinality 0..*
Type Identifier
Requirements

Allows identification of the family member history as it is known by various participating systems and in a way that remains consistent across servers.

Summary true
Comments

This is a business identifier, not a resource identifier (see discussion). It is best practice for the identifier to only appear on a single resource instance, however business practices may occasionally dictate that multiple resource instances with the same identifier can exist - possibly even with different resource types. For example, multiple Patient and a Person resource instance might share the same social insurance number.

FamilyMemberHistory.instantiatesCanonical
Element Id FamilyMemberHistory.instantiatesCanonical
Definition

The URL pointing to a FHIR-defined protocol, guideline, orderset or other definition that is adhered to in whole or in part by this FamilyMemberHistory.

Short Display Instantiates FHIR protocol or definition
Cardinality 0..*
Type canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition)
Summary true
FamilyMemberHistory.instantiatesUri
Element Id FamilyMemberHistory.instantiatesUri
Definition

The URL pointing to an externally maintained protocol, guideline, orderset or other definition that is adhered to in whole or in part by this FamilyMemberHistory.

Short Display Instantiates external protocol or definition
Cardinality 0..*
Type uri
Summary true
Comments

This might be an HTML page, PDF, etc. or could just be a non-resolvable URI identifier.

FamilyMemberHistory.status
Element Id FamilyMemberHistory.status
Definition

A code specifying the status of the record of the family history of a specific family member.

Short Display partial | completed | entered-in-error | health-unknown
Cardinality 1..1
Terminology Binding Family History Status (Required)
Type code
Is Modifier true (Reason: This element is labelled as a modifier because it is a status element that contains status entered-in-error which means that the resource should not be treated as valid)
Summary true
Comments

This element is labeled as a modifier because the status contains codes that mark the resource as not currently valid.

FamilyMemberHistory.dataAbsentReason
Element Id FamilyMemberHistory.dataAbsentReason
Definition

Describes why the family member's history is not available.

Short Display subject-unknown | withheld | unable-to-obtain | deferred
Cardinality 0..1
Terminology Binding Family History Absent Reason (Example)
Type CodeableConcept
Requirements

This is a separate element to allow it to have a distinct binding from reasonCode.

Summary true
FamilyMemberHistory.patient
Element Id FamilyMemberHistory.patient
Definition

The person who this history concerns.

Short Display Patient history is about
Cardinality 1..1
Type Reference(Patient)
Alternate Names Proband
Summary true
Comments

This is not the family member.

FamilyMemberHistory.date
Element Id FamilyMemberHistory.date
Definition

The date (and possibly time) when the family member history was recorded or last updated.

Short Display When history was recorded or last updated
Cardinality 0..1
Type dateTime
Requirements

Allows determination of how current the summary is.

Summary true
Comments

This should be captured even if the same as the date on the List aggregating the full family history.

FamilyMemberHistory.participant
Element Id FamilyMemberHistory.participant
Definition

Indicates who or what participated in the activities related to the family member history and how they were involved.

Short Display Who or what participated in the activities related to the family member history and how they were involved
Cardinality 0..*
Summary true
FamilyMemberHistory.participant.function
Element Id FamilyMemberHistory.participant.function
Definition

Distinguishes the type of involvement of the actor in the activities related to the family member history.

Short Display Type of involvement
Cardinality 0..1
Terminology Binding Participation Role Type (Extensible)
Type CodeableConcept
Summary true
FamilyMemberHistory.participant.actor
Element Id FamilyMemberHistory.participant.actor
Definition

Indicates who or what participated in the activities related to the family member history.

Short Display Who or what participated in the activities related to the family member history
Cardinality 1..1
Type Reference(Practitioner | PractitionerRole | Patient | RelatedPerson | Device | Organization | CareTeam)
Summary true
FamilyMemberHistory.name
Element Id FamilyMemberHistory.name
Definition

This will either be a name or a description; e.g. "Aunt Susan", "my cousin with the red hair".

Short Display The family member described
Cardinality 0..1
Type string
Requirements

Allows greater ease in ensuring the same person is being talked about.

Summary true
FamilyMemberHistory.relationship
Element Id FamilyMemberHistory.relationship
Definition

The type of relationship this person has to the patient (father, mother, brother etc.).

Short Display Relationship to the subject
Cardinality 1..1
Terminology Binding FamilyMember icon (Example)
Type CodeableConcept
Summary true
FamilyMemberHistory.sex
Element Id FamilyMemberHistory.sex
Definition

The birth sex of the family member.

Short Display male | female | other | unknown
Cardinality 0..1
Terminology Binding AdministrativeGender (Extensible)
Type CodeableConcept
Requirements

Not all relationship codes imply sex and the relative's sex can be relevant for risk assessments.

Summary true
Comments

This element should ideally reflect whether the individual is genetically male or female. However, as reported information based on the knowledge of the patient or reporting friend/relative, there may be situations where the reported sex might not be totally accurate. E.g. 'Aunt Sue' might be XY rather than XX. Questions soliciting this information should be phrased to encourage capture of genetic sex where known. However, systems performing analysis should also allow for the possibility of imprecision with this element.

FamilyMemberHistory.born[x]
Element Id FamilyMemberHistory.born[x]
Definition

The actual or approximate date of birth of the relative.

Short Display (approximate) date of birth
Cardinality 0..1
Type Period|date|string
[x] Note See Choice of Datatypes for further information about how to use [x]
Requirements

Allows calculation of the relative's age.

Summary false
Invariants
Affect this element
fhs-1Rule Can have age[x] or born[x], but not bothage.empty() or born.empty()
FamilyMemberHistory.age[x]
Element Id FamilyMemberHistory.age[x]
Definition

The age of the relative at the time the family member history is recorded.

Short Display (approximate) age
Cardinality 0..1
Type Age|Range|string
[x] Note See Choice of Datatypes for further information about how to use [x]
Requirements

While age can be calculated from date of birth, sometimes recording age directly is more natural for clinicians.

Summary true
Comments

use estimatedAge to indicate whether the age is actual or not.

Invariants
Affect this element
fhs-2Rule Can only have estimatedAge if age[x] is presentage.exists() or estimatedAge.empty()
fhs-1Rule Can have age[x] or born[x], but not bothage.empty() or born.empty()
fhs-3Rule Can have age[x] or deceased[x], but not bothage.empty() or deceased.empty()
FamilyMemberHistory.estimatedAge
Element Id FamilyMemberHistory.estimatedAge
Definition

If true, indicates that the age value specified is an estimated value.

Short Display Age is estimated?
Cardinality 0..1
Type boolean
Meaning if Missing It is unknown whether the age is an estimate or not
Requirements

Clinicians often prefer to specify an estimaged age rather than an age range.

Summary true
Comments

This element is labeled as a modifier because the fact that age is estimated can/should change the results of any algorithm that calculates based on the specified age.

Invariants
Affect this element
fhs-2Rule Can only have estimatedAge if age[x] is presentage.exists() or estimatedAge.empty()
FamilyMemberHistory.deceased[x]
Element Id FamilyMemberHistory.deceased[x]
Definition

Deceased flag or the actual or approximate age of the relative at the time of death for the family member history record.

Short Display Dead? How old/when?
Cardinality 0..1
Type boolean|Age|Range|date|string
[x] Note See Choice of Datatypes for further information about how to use [x]
Summary true
Invariants
Affect this element
fhs-3Rule Can have age[x] or deceased[x], but not bothage.empty() or deceased.empty()
FamilyMemberHistory.reason
Element Id FamilyMemberHistory.reason
Definition

Describes why the family member history occurred in coded or textual form, or Indicates a Condition, Observation, AllergyIntolerance, or QuestionnaireResponse that justifies this family member history event.

Short Display Why was family member history performed?
Cardinality 0..*
Terminology Binding SNOMED CT Clinical Findings (Example)
Type CodeableReference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference)
Summary true
Comments

Textual reasons can be captured using reasonCode.text.

FamilyMemberHistory.note
Element Id FamilyMemberHistory.note
Definition

This property allows a non condition-specific note to the made about the related person. Ideally, the note would be in the condition property, but this is not always possible.

Short Display General note about related person
Cardinality 0..*
Type Annotation
Summary false
FamilyMemberHistory.condition
Element Id FamilyMemberHistory.condition
Definition

The significant Conditions (or condition) that the family member had. This is a repeating section to allow a system to represent more than one condition per resource, though there is nothing stopping multiple resources - one per condition.

Short Display Condition that the related person had
Cardinality 0..*
Summary false
FamilyMemberHistory.condition.code
Element Id FamilyMemberHistory.condition.code
Definition

The actual condition, allergy, or intolerance specified. Could be a coded condition (like MI or Diabetes) or a less specific string like 'cancer' depending on how much is known about the condition and the capabilities of the creating system.

Short Display Condition, allergy, or intolerance suffered by relation
Cardinality 1..1
Terminology Binding Condition/Problem/Diagnosis Codes (Example)
Type CodeableConcept
Summary false
FamilyMemberHistory.condition.outcome
Element Id FamilyMemberHistory.condition.outcome
Definition

Indicates what happened following the condition. If the condition resulted in death, deceased date is captured on the relation.

Short Display deceased | permanent disability | etc
Cardinality 0..1
Terminology Binding Condition Outcome Codes (Example)
Type CodeableConcept
Summary false
FamilyMemberHistory.condition.contributedToDeath
Element Id FamilyMemberHistory.condition.contributedToDeath
Definition

This condition contributed to the cause of death of the related person. If contributedToDeath is not populated, then it is unknown.

Short Display Whether the condition contributed to the cause of death
Cardinality 0..1
Type boolean
Summary false
FamilyMemberHistory.condition.onset[x]
Element Id FamilyMemberHistory.condition.onset[x]
Definition

Either the age of onset, range of approximate age or descriptive string can be recorded. For conditions with multiple occurrences, this describes the first known occurrence.

Short Display When condition first manifested
Cardinality 0..1
Type Age|Range|Period|string
[x] Note See Choice of Datatypes for further information about how to use [x]
Requirements

Age of onset of a condition in relatives is predictive of risk for the patient.

Summary false
FamilyMemberHistory.condition.note
Element Id FamilyMemberHistory.condition.note
Definition

An area where general notes can be placed about this specific condition.

Short Display Extra information about condition
Cardinality 0..*
Type Annotation
Summary false
FamilyMemberHistory.procedure
Element Id FamilyMemberHistory.procedure
Definition

The significant Procedures (or procedure) that the family member had. This is a repeating section to allow a system to represent more than one procedure per resource, though there is nothing stopping multiple resources - one per procedure.

Short Display Procedures that the related person had
Cardinality 0..*
Summary false
FamilyMemberHistory.procedure.code
Element Id FamilyMemberHistory.procedure.code
Definition

The actual procedure specified. Could be a coded procedure or a less specific string depending on how much is known about the procedure and the capabilities of the creating system.

Short Display Procedures performed on the related person
Cardinality 1..1
Terminology Binding Procedure Codes (SNOMED CT) (Example)
Type CodeableConcept
Summary false
FamilyMemberHistory.procedure.outcome
Element Id FamilyMemberHistory.procedure.outcome
Definition

Indicates what happened following the procedure. If the procedure resulted in death, deceased date is captured on the relation.

Short Display What happened following the procedure
Cardinality 0..1
Terminology Binding SNOMED CT Clinical Findings (Example)
Type CodeableConcept
Summary false
FamilyMemberHistory.procedure.contributedToDeath
Element Id FamilyMemberHistory.procedure.contributedToDeath
Definition

This procedure contributed to the cause of death of the related person. If contributedToDeath is not populated, then it is unknown.

Short Display Whether the procedure contributed to the cause of death
Cardinality 0..1
Type boolean
Summary false
FamilyMemberHistory.procedure.performed[x]
Element Id FamilyMemberHistory.procedure.performed[x]
Definition

Estimated or actual date, date-time, period, or age when the procedure was performed. Allows a period to support complex procedures that span more than one date, and also allows for the length of the procedure to be captured.

Short Display When the procedure was performed
Cardinality 0..1
Type Age|Range|Period|string|dateTime
[x] Note See Choice of Datatypes for further information about how to use [x]
Summary false
FamilyMemberHistory.procedure.note
Element Id FamilyMemberHistory.procedure.note
Definition

An area where general notes can be placed about this specific procedure.

Short Display Extra information about the procedure
Cardinality 0..*
Type Annotation
Summary false