MCC eCare Plan Implementation Guide
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This page is part of the MCC eCare Plan Implementation Guide (v1.0.0-ballot2: STU 1 Ballot 2) based on FHIR R4. . For a full list of available versions, see the Directory of published versions

MCC Symptom Value Sets

This table holds the value sets that may be used with the MCC Symptom Observation Profile.

Table Key

  • Value Set Name and Link: All of these value sets are housed in the NLM Value Set Authority Center (VSAC). The value set name is a link to the value set. You must have an NLM/UMLS account to access. There is no charge for an account. Note: the first time you click on the value set name link in a given session, there my be a delay in loading and you will need to sign in once loaded.
  • Value Set Clinical Focus: The Value Set Clinical Focus is the same as the clinical focus as written in VSAC which is a free text statement describing the general context of the concepts in the set.
  • OID: The Object Identifier (OID) of the set. OIDs of value sets are unique, whereas the names may not be. If accessing the value set outside of this table link, it is safest to perform that search with the OID
  • Profile Element: The Profile element asserts the location within the profile the value set term SHALL be used.

MCC Value Sets Use and Validation The value sets in the MCC Value Set Library pages are not bound within any profile. As a result “automatic” validation (confirmation) that a code sent in an instance is a member of that value set will not occurr. Validation support can be added in implmentation. These Symptom Value Sets may be used for several different purposes and no clinically appropriate use is precluded:

  • Querying for patients that have experienced particular symptoms
  • Within Quality Measures or for research using Clinical Quality Language (CQL) (for example)
  • For display within applications
  • Terminology validation support

Accessing Value Sets using FHIR Value Set Resource

  • To fetch the FHIR ValueSet resource (in other words, the value set definition) use:
  • GET https://cts.nlm.nih.gov/fhir/ValueSet/[VSAC OID]
  • To fetch the FHIR ValueSet resource expansion use the FHIR $expand operation:
  • GET https://cts.nlm.nih.gov/fhir/ValueSet/[VSAC OID]/$expand

For more information refer to the FHIR Terminology Service for VSAC Resources

Value Set Name and VSAC Link

Value Set Clinical Focus

OID

Profile Element

Abdominal Pain

This set of values reflect patients experiencing abdominal pain between the chest and pelvic regions.

2.16.840.1.113762.1.4.1222.1435

Observation.valueCodableConcept

Anxiety

This set of values reflect patients with anxiety symptoms such as the sense of uneasiness, distress, or dread.

2.16.840.1.113762.1.4.1222.1380

Observation.valueCodableConcept

Arthralgia

This set of values reflect patients experiencing aching or pain in one or more of the joints in the body.

2.16.840.1.113762.1.4.1222.1425

Observation.valueCodableConcept

Autonomic dysfunction

This set of values contains diagnosis and finding terms representing autonomic dysfunction. These patients may experience lightheadedness, orthostatic headache, syncope, hyperhidrosis, burning pain, and other Somatoform autonomic dysfunction.

2.16.840.1.113762.1.4.1222.1492

Observation.valueCodableConcept

Back Pain

This set of values reflect patients experiencing pain in the lower or upper back.

2.16.840.1.113762.1.4.1222.1429

Observation.valueCodableConcept

Bleeding

This set of values reflect patients experiencing loss of blood from the body.

2.16.840.1.113762.1.4.1222.1434

Observation.valueCodableConcept

Brain Fog

This set of values reflect a patient feeling of being sluggish, fuzzy, and not sharp.

2.16.840.1.113762.1.4.1222.1377

Observation.valueCodableConcept

Chest Pain

This set of values reflect patients experiencing discomfort in the chest including a dull ache, a crushing or burning feeling, a sharp stabbing pain, and pain that radiates to the neck or shoulder.

2.16.840.1.113762.1.4.1222.1426

Observation.valueCodableConcept

Chills

This set of values reflect patients with chills, a feeling of being cold without an apparent cause.

2.16.840.1.113762.1.4.1222.1399

Observation.valueCodableConcept

Chronic Pain

This set of values reflect patients experiencing chronic pain that lasts more than several months.

2.16.840.1.113762.1.4.1222.1458

Observation.valueCodableConcept

Constipation

This set of values reflect patients experiencing infrequent bowel movements or difficult passage of stools that persists for several days or weeks.

2.16.840.1.113762.1.4.1222.1440

Observation.valueCodableConcept

Cough

This set of values reflect patients having cough symptoms.

2.16.840.1.113762.1.4.1222.1405

Observation.valueCodableConcept

Covid Toes (Toes and/or Fingers)

This set of values reflect patients experiencing Covid Toes is a condition that develops on your toes, fingers, or both. Along with the swelling and discoloration, COVID toes can also cause blisters, itch, or pain. Some people develop painful raised bumps or areas of rough skin. Others may see a small amount of pus under their skin.

2.16.840.1.113762.1.4.1222.1446

Observation.valueCodableConcept

Debility or Frailty

This set of values contains finding of Debility or Frailty related terms representing physical weakness, feebleness, or infirmity.

2.16.840.1.113762.1.4.1222.1502

Observation.valueCodableConcept

Depression Symptoms

This set of values reflect patient feelings of being depressed due to isolation, loneliness, anxiety and stress.

2.16.840.1.113762.1.4.1222.1378

Observation.valueCodableConcept

Diarrhea

This set of values reflect patients experiencing loose, watery and possibly more frequent bowel movements.

2.16.840.1.113762.1.4.1222.1436

Observation.valueCodableConcept

Difficulty Swallowing

This set of values reflect patients experiencing difficulty swallowing food or liquids.

2.16.840.1.113762.1.4.1222.1441

Observation.valueCodableConcept

Disability Severity

This set of values reflect patients' disability severity as mild, moderate, severe or profound.

2.16.840.1.113762.1.4.1222.1455

Observation.valueCodableConcept

Dizziness

This set of values reflect patients experiencing dizziness feeling faint or unsteady.

2.16.840.1.113762.1.4.1222.1451

Observation.valueCodableConcept

Dyspnea

This set of values reflect patients experiencing Dyspnea or shortness of breath, an intense tightening in the chest, air hunger, breathlessness, increased respiratory efforts or a feeling of suffocation.

2.16.840.1.113762.1.4.1222.1406

Observation.valueCodableConcept

Edema

This set of values reflect patients experiencing edema, a swelling caused by excess fluid trapped in the body's tissues.

2.16.840.1.113762.1.4.1222.1415

Observation.valueCodableConcept

Fatigue

This set of values reflect patients with an extreme tiredness or feeling wiped out that persists despite resting or getting a good night's sleep. This includes physical fatigue such as post-exertional malaise and mental fatigue.

2.16.840.1.113762.1.4.1222.1398

Observation.valueCodableConcept

Fever

This set of values reflect patients with fever, a temporary increase in your body temperature, often due to an illness.

2.16.840.1.113762.1.4.1222.1400

Observation.valueCodableConcept

Functional and Mobility Impairment

This set of values reflect patients with difficulty completing activities of daily living and instrumental activities of daily living. The disability that affects movement ranging from gross motor skills, such as walking, to fine motor movement, involving manipulation of objects by hand..

2.16.840.1.113762.1.4.1222.1401

Observation.valueCodableConcept

Gastroesophageal Reflux

This set of values reflect patients experiencing gastroesophageal reflux or acid reflux.

2.16.840.1.113762.1.4.1222.1437

Observation.valueCodableConcept

Grief and Suffering

This set of values reflect patients with grief and suffering related symptoms (a natural reaction to loss and a state of pain or distress).

2.16.840.1.113762.1.4.1222.1383

Observation.valueCodableConcept

Hair Loss

This set of values reflect patients experiencing a loss of hair from part of the head or body.

2.16.840.1.113762.1.4.1222.1453

Observation.valueCodableConcept

Headache

This set of values reflect patients experiencing headache.

2.16.840.1.113762.1.4.1222.1427

Observation.valueCodableConcept

Hypercoagulability

This set of values reflect patients hypercoagulability state with increased risk for blood clots developing in the arteries and veins. This value set is intended to capture microclots tendency observed in long COVID patients.

2.16.840.1.113762.1.4.1222.1456

Observation.valueCodableConcept

Immunologic Changes

This set of values reflect patients experiencing immunological changes such as increased frequency of infections, increased allergic responses, idiosyncratic responses to medications, fears about response to vaccines or other medications.

2.16.840.1.113762.1.4.1222.1422

Observation.valueCodableConcept

Impaired Hearing

This set of values reflect patients with impaired hearing, a diminished acuity to sounds which would otherwise be heard normally.

2.16.840.1.113762.1.4.1222.1460

Observation.valueCodableConcept

Impaired Sense of Smell

This set of values reflect patients with impaired sense of smell including anosmia, hyposmia, and dysosmia.

2.16.840.1.113762.1.4.1222.1396

Observation.valueCodableConcept

Impaired Sense of Taste

This set of values reflect patients with impaired sense of taste which is a distortion or complete loss of sense of taste.

2.16.840.1.113762.1.4.1222.1385

Observation.valueCodableConcept

Insomnia and Other Sleep Difficulties

This set of values reflect patients with insomnia and other sleep difficulties.

2.16.840.1.113762.1.4.1222.1384

Observation.valueCodableConcept

Itching

This set of values reflect patients experiencing itching, an uncomfortable, irritating sensation that makes you want to scratch.

2.16.840.1.113762.1.4.1222.1447

Observation.valueCodableConcept

Language and Speech Problems

This set of values reflect patients experiencing language problems, a difficulty expressing and understanding what others are saying and speech problems that affect a person's ability to produce sounds that create words.

2.16.840.1.113762.1.4.1222.1485

Observation.valueCodableConcept

Lightheadedness

This set of values reflect patients with lightheadedness symptoms such as feeling of faintness, dizziness or being close to passing out.

2.16.840.1.113762.1.4.1222.1381

Observation.valueCodableConcept

Loss of Appetite

This set of values reflect patients experiencing loss of appetite or absence of hunger.

2.16.840.1.113762.1.4.1222.1443

Observation.valueCodableConcept

Lower Urinary Tract Symptoms

This set of values reflect patients experiencing lower urinary tract symptoms primarily associated with overactive bladder (frequency, urgency, and nocturia).

2.16.840.1.113762.1.4.1222.1449

Observation.valueCodableConcept

Menstrual Cycle Irregularities

This set of values reflect patients experiencing menstrual cycle irregularities such as shorter or longer than normal, heavier or lighter than normal, or other problems, like abdominal cramps.

2.16.840.1.113762.1.4.1222.1448

Observation.valueCodableConcept

Mood Swings

This set of values reflect patients with rapidly and intensely fluctuating emotions.

2.16.840.1.113762.1.4.1222.1379

Observation.valueCodableConcept

Myalgia

This set of values reflect patients experiencing muscle aches and pain.

2.16.840.1.113762.1.4.1222.1428

Observation.valueCodableConcept

Nausea

This set of values reflect patients experiencing nausea, a feeling of sickness or discomfort in the stomach that may come with an urge to vomit.

2.16.840.1.113762.1.4.1222.1438

Observation.valueCodableConcept

Neurogenic Pain

This set of values reflect patients experiencing neurogenic pain. This value set is intended to capture neurologic pain observed in long COVID patients.

2.16.840.1.113762.1.4.1222.1459

Observation.valueCodableConcept

Orthostatic Intolerance

This set of values reflect patients experiencing symptoms related to Orthostatic Intolerance such as lightheadedness, dizziness, nausea, and vision changes.

2.16.840.1.113762.1.4.1222.1403

Observation.valueCodableConcept

Pain

This set of values reflect patients experiencing pain, localized or generalized uncomfortable sensations in the body.

2.16.840.1.113762.1.4.1222.1424

Observation.valueCodableConcept

Pain in Extremities

This set of values reflect patients experiencing discomfort sensation in the upper or lower extremities.

2.16.840.1.113762.1.4.1222.1430

Observation.valueCodableConcept

Pain in Throat

This set of values reflects patients experiencing discomfort or irritation of the throat.

2.16.840.1.113762.1.4.1222.1431

Observation.valueCodableConcept

Palpitations

This set of values reflect patients experiencing feelings of having a fast-beating, fluttering or pounding heart.

2.16.840.1.113762.1.4.1222.1432

Observation.valueCodableConcept

Paresthesia

This set of values reflect patients experiencing an abnormal sensation of the body, such as numbness, tingling, or burning.

2.16.840.1.113762.1.4.1222.1444

Observation.valueCodableConcept

Parkinsonia Like Symptoms

This set of values reflect patients experiencing parkinsonia like symptoms such as tremor, slowed movement (bradykinesia), rigid muscles, impaired posture and balance, loss of automatic movements, speech changes, and writing changes.

2.16.840.1.113762.1.4.1222.1461

Observation.valueCodableConcept

Post Exertional Malaise

This set of values reflect patients experiencing post-exertional malaise.

2.16.840.1.113762.1.4.1222.1457

Observation.valueCodableConcept

Rash

This set of values reflect patients experiencing rash, an area of irritated, swollen skin with eruptions on it.

2.16.840.1.113762.1.4.1222.1445

Observation.valueCodableConcept

Respiratory Distress

This set of values reflect patients experiencing wheezing, dyspnea and other signs of respiratory distress.

2.16.840.1.113762.1.4.1222.1414

Observation.valueCodableConcept

Sinonasal Congestion

This set of values reflect patients experiencing nasal congestion or sinus congestion.

2.16.840.1.113762.1.4.1222.1413

Observation.valueCodableConcept

Stress

This set of values reflect patients with mental Stress related symptoms mainly physical and emotional reactions that people experience as they encounter changes in life.

2.16.840.1.113762.1.4.1222.1382

Observation.valueCodableConcept

Tachycardia

This set of values reflect patients experiencing fast heart beats.

2.16.840.1.113762.1.4.1222.1433

Observation.valueCodableConcept

Tinnitus

This set of values reflect patients with ringing or other noises in one or both ears.

2.16.840.1.113762.1.4.1222.1375

Observation.valueCodableConcept

Urinary Incontinence

This set of values reflect patients experiencing an involuntary leakage of urine from the bladder.

2.16.840.1.113762.1.4.1222.1450

Observation.valueCodableConcept

Visual Changes

This set of values reflect patients with visual changes such as blurry vision, visual alteration, fatigue and tired eye.

2.16.840.1.113762.1.4.1222.1395

Observation.valueCodableConcept

Vomiting

This set of values reflect patients experiencing vomiting, a forceful discharge of stomach contents.

2.16.840.1.113762.1.4.1222.1439

Observation.valueCodableConcept

Weight Changes

This set of values reflect patients experiencing abnormal weight, weight gain and weight loss.

2.16.840.1.113762.1.4.1222.1419

Observation.valueCodableConcept

Wheezing

This set of values reflect patients experiencing wheezing, a high-pitched whistling sound made while breathing.

2.16.840.1.113762.1.4.1222.1409

Observation.valueCodableConcept