This page is part of the PACIO Advance Directive Information Implementation Guide (v1.0.0: STU 1) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version in its permanent home (it will always be available at this URL). For a full list of available versions, see the Directory of published versions
: Care Plan for Terminal illness, lack of meaningful interaction - TTL Representation
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@prefix fhir: <http://hl7.org/fhir/> .
@prefix owl: <http://www.w3.org/2002/07/owl#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix sct: <http://snomed.info/id/> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .
# - resource -------------------------------------------------------------------
a fhir:CarePlan ;
fhir:nodeRole fhir:treeRoot ;
fhir:id [ fhir:v "Example-Smith-Johnson-PreferenceCarePlan3"] ; #
fhir:meta [
( fhir:profile [
fhir:v "http://hl7.org/fhir/us/pacio-adi/StructureDefinition/ADI-PreferenceCarePlan"^^xsd:anyURI ;
fhir:link <http://hl7.org/fhir/us/pacio-adi/StructureDefinition/ADI-PreferenceCarePlan> ] )
] ; #
fhir:text [
fhir:status [ fhir:v "additional" ] ;
fhir:div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>status</b>: active</p><p><b>intent</b>: proposal</p><p><b>category</b>: <span title=\"Codes: {http://snomed.info/sct 736366004}\">Advance care plan</span></p><p><b>subject</b>: <a href=\"Patient-Example-Smith-Johnson-Patient1.html\">Betsy Smith-Johnson</a> ; BetsySJ@example.com; gender: female; birthDate: 1950-11-15</p><p><b>addresses</b>: <span>Terminal illness, lack of meaningful interaction</span></p><p><b>goal</b>:</p><ul><li><a href=\"Goal-Example-Smith-Johnson-PersonalGoal1.html\"><span title=\"Codes: {http://loinc.org 81378-2}\">Goals, preferences, and priorities under certain health conditions [Reported]</span></a>; <span title=\"Codes: \">If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me: Avoiding prolonged dependence on machines, Not being a physical burden to my family, Dying at home</span></li><li><a href=\"Observation-Example-Smith-Johnson-CareExperiencePreference1.html\"><span title=\"Codes: {http://loinc.org 75775-7}\">Decision to inform doctors and nurses about the role religion, faith, culture, or spirituality play in my life [Reported]</span></a>; <span title=\"Codes: \">Here are some thoughts that I would like for my medical care team and my healthcare agent(s) to know about the role that religion, faith or spirituality play in my life: I am Catholic, please call Father Mark at Saint Catherine's on Main Street.</span></li><li><a href=\"Observation-Example-Smith-Johnson-CareExperiencePreference2.html\"><span title=\"Codes: {http://loinc.org 81360-0}\">My likes and joys [Reported]</span></a>; <span title=\"Codes: \">Here are some examples of the things that I would like to have near me, music that I’d like to hear, and other details of my care that would help to keep me happy and relaxed: I love the smell of lavender and the feeling of sunshine on my face.</span></li><li><a href=\"Observation-Example-Smith-Johnson-CareExperiencePreference3.html\"><span title=\"Codes: {http://loinc.org 81362-6}\">My dislikes and fears [Reported]</span></a>; <span title=\"Codes: \">Here is a list of things that I would like to avoid if at all possible, people that I don’t wish to see, and concerns I have about particular family members, pets, and so on: I do not like my feet to be cold.</span></li><li><a href=\"Observation-Example-Smith-Johnson-CareExperiencePreference4.html\"><span title=\"Codes: {http://loinc.org 81380-8}\">Goals, preferences, and priorities for care experience [Reported]</span></a>; <span title=\"Codes: \">How to care for me: If I become incapacitated and cannot express myself, here is what I would like to tell my healthcare agent, family and friends about how I would like for them to care for me: I want photos of my family where I can see them.</span></li><li><a href=\"Observation-Example-Smith-Johnson-CareExperiencePreference5.html\"><span title=\"Codes: {http://loinc.org 81364-2}\">Religious or cultural beliefs [Reported]</span></a>; <span title=\"Codes: \">If I appear to be approaching the end of my life, here are some things that I would like for my caregivers to know about my faith and my religion. Please call Father Mark if my condition warrants the services of a priest.</span></li><li><a href=\"Observation-Example-Smith-Johnson-CareExperiencePreference7.html\"><span title=\"Codes: {http://loinc.org 81366-7}\">Unfinished business [Reported]</span></a>; <span title=\"Codes: \">If it appears that I am approaching the end of my life, and I cannot communicate with persons around me, I would want my doctors and nurses, my family, and my friends to know about some unfinished business that I need to address: I want my sister and I to talk again, and miss her. I wish we hadn't disagreed all those years ago and regret the time it has cost us. I'd like to see her face if I were very ill and needed the comfort of family at my side.</span></li><li><a href=\"Observation-Example-Smith-Johnson-PersonalInterventionPreference1.html\"><span title=\"Codes: {http://loinc.org 75776-5}\">Preference on consulting a supportive and palliative care team to help treat physical, emotional, and spiritual discomfort and support family [Reported]</span></a>; <span title=\"Codes: \">If I am having significant pain or suffering, I would like my doctors to consult a Supportive and Palliative Care Team to help treat my physical, emotional and spiritual discomfort, and to support my family.</span></li><li><a href=\"Observation-Example-Smith-Johnson-PersonalInterventionPreference3.html\"><span title=\"Codes: {http://loinc.org 75778-1}\">Information to tell doctors if I have a severe, irreversible brain injury or illness and can't dress, feed, or bathe myself, or communicate my medical wishes, but can be kept alive [Reported]</span></a>; <span title=\"Codes: \">If my health ever deteriorates due to a terminal illness, and my doctors believe I will not be able to interact meaningfully with my family, friends, or surroundings, I would like for them to keep trying life-sustaining treatments until my healthcare agent decides it is time to stop and such treatments and let me die gently.</span></li><li><a href=\"Observation-Example-Smith-Johnson-PersonalInterventionPreference5.html\"><span title=\"Codes: {http://loinc.org 75780-7}\">Preferred location to spend final days if possible to choose [Reported]</span></a>; <span title=\"Codes: \">If it were possible to choose, here is where I would like to spend my final days: At home.I would like to receive hospice care at home if possible.</span></li></ul></div>"
] ; #
fhir:status [ fhir:v "active"] ; #
fhir:intent [ fhir:v "proposal"] ; #
fhir:category ( [
( fhir:coding [
a sct:736366004 ;
fhir:system [ fhir:v "http://snomed.info/sct"^^xsd:anyURI ] ;
fhir:code [ fhir:v "736366004" ] ;
fhir:display [ fhir:v "Advance care plan" ] ] )
] ) ; #
fhir:title [ fhir:v "Care Plan for Terminal illness, lack of meaningful interaction"] ; #
fhir:subject [
fhir:reference [ fhir:v "Patient/Example-Smith-Johnson-Patient1" ]
] ; #
fhir:addresses ( [
fhir:display [ fhir:v "Terminal illness, lack of meaningful interaction" ]
] ) ; #
fhir:supportingInfo ( [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-CareExperiencePreference1" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-CareExperiencePreference2" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-CareExperiencePreference3" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-CareExperiencePreference4" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-CareExperiencePreference5" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-CareExperiencePreference7" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-PersonalInterventionPreference1" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-PersonalInterventionPreference3" ]
] [
fhir:reference [ fhir:v "Observation/Example-Smith-Johnson-PersonalInterventionPreference5" ]
] ) ; #
fhir:goal ( [
fhir:reference [ fhir:v "Goal/Example-Smith-Johnson-PersonalGoal1" ]
] ) . #
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