DSTU2 Ballot Source

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4.28.10 U.S. Data Access Framework (DAF) FamilyMemberHistory Profile (Profile)

4.28.10.1 Scope and Usage

This profile sets expectations for use of the FamilyMemberHistory resource to record a patient's relatives and those relatives' conditions within the Data Access Framework (DAF) Implementation Guide. This profile identifies which core elements, extensions, vocabularies and value sets must be Supported by DAF actors. For the definition of Supported please refer to DAF FHIR IG. The data elements identified by the profile are based on ONC 2014 Edition S&CC and DAF use cases. The mappings between the ONC 2014 Edition S&CC data elements and DAF data elements are captured in the table below, where the first column identifies the ONC 2014 Edition S&CC data element name, the second column maps the ONC 2014 Edition S&CC data elements to DAF data elements which are derived from ONC 2014 Edition S&CC standards and DAF use cases and lastly the third column identifies the mapping to FHIR resources and attributes.

4.28.10.2 Meaningful Use Data Element Mapping

The DAF FamilyMemberHistory profile mapping to Meaningful Use data elements and FHIR Resources are as shown below.


Meaningful Use Data Element Name Mapping to Priority DAF Data Elements FHIR Resource Mapping
Family Health History
Family Member Name FamilyMemberHistory.name
Family Member Date of Birth FamilyMemberHistory.age[x]
Family Member Relationship to Patient FamilyMemberHistory.relationship
Family Member Medical Condition FamilyMemberHistory.condition.type
Family Member Medical Condition onsetAge FamilyMemberHistory.condition.age[x]

4.28.10.3 Boundaries and Relationships

This profile relies on the following other profiles:

  • FamilyMemberHistory instances are frequently aggregated into a full "Family History" using the List resource
  • FHIR Extensibility defines how extensions can be applied to FHIR resources and data types. Specifically the data-absent-reason extension can be used to code data elements with missing information when appropriate. See DAF FHIR IG for additional guidance.

4.28.10.4 Content

Profiles:
DAFFamilyMemberHistoryDefines constraints and extensions on the FamilyMemberHistory resource for use in querying and retrieving patient's family member's history information.

4.28.10.5 Search Parameters

Search parameters defined by this package. See Searching for more information about searching in REST, messaging, and services.

NameTypeDescriptionPathsSource
familymemberhistoryconditiontokenSearch for a history of a particular condition within a patient's family.f:FamilyMemberHistory/f:condition/f:typeXML / JSON
relationshiptokenSearch for family history of members based on relationshipf:FamilyMemberHistory/f:relationshipXML / JSON

4.28.10.5.1 Search Parameters

The full list of supported search parameters are can be accessed at DAF Requestor conformance expectations and DAF Responder conformance expectations.

4.28.10.5.2 Example Usage Scenarios

The following are example usage scenarios for the DAFFamilyMemberHistory profile:

  • Query for family history of a patient
  • Query for all patients whose family history has a particular medical condition
  • Query for family history based on patient's relationship with family member

4.28.10.5.3 Profile specific implementation guidance

The List resource is used to aggregate FamilyMemberHistory instances into a complete Family History.

Please refer to DAF FHIR IG for implementation guidance common to all profiles.